Jesy Nelson has revealed another emotional chapter in her family’s journey, sharing that one of her twin daughters has now been diagnosed with scoliosis while both girls prepare for further surgery.

The former Little Mix star, 35, has never hidden the reality of raising daughters Ocean and Story, who were diagnosed earlier this year with Spinal Muscular Atrophy (SMA) Type 1—a rare genetic condition that causes progressive muscle weakness. Now, she says the challenges continue as the family faces yet another difficult milestone.

Speaking ahead of her new Prime Video documentary, Jesy Nelson: Life Changing, the singer described life as a “never-ending, life-changing situation,” admitting that every day brings new medical decisions and emotional hurdles.

Fresh Challenges for Story and Ocean

Jesy revealed that Story has recently been diagnosed with scoliosis, an abnormal curvature of the spine that doctors expect will require repeated spinal surgery every six months as she grows.

At the same time, both Story and Ocean are preparing for another operation to change the way they receive nutrition.

The twins currently rely on feeding tubes inserted through their noses, but as they have grown older, the tubes have become increasingly painful.

“They’re having an operation soon,” Jesy explained. “The tubes are causing so much trauma to their nose and throat.”

Doctors now plan to insert feeding tubes directly into the girls’ stomachs, a procedure designed to make feeding more comfortable and reduce ongoing discomfort.

“It Doesn’t Get Easier”

Despite months of hospital appointments and treatments, Jesy admitted life has not become any easier.

“I wish I could say, ‘Oh, it’s easier now,’ but it’s not,” she said. “It’s a never-ending, life-changing situation.”

The singer became emotional while describing the reality of caring for children with complex medical needs, saying there is so much happening behind the scenes that many people never see.

According to Jesy, one of the biggest reasons she agreed to film her family’s journey was to give others a genuine understanding of what families living with SMA experience every single day.

“There’s just so much that I don’t think people even know goes on,” she explained. “I wanted to make this documentary because it only gives a small insight into what families have to go through on a daily basis.”

Turning Heartbreak Into Hope

While the documentary captures some of the family’s most difficult moments, Jesy hopes it will also inspire change.

She has become one of the UK’s most prominent campaigners for newborn SMA screening, arguing that earlier diagnosis can dramatically improve treatment options and quality of life.

Her campaign recently celebrated a major breakthrough after the UK confirmed newborn SMA screening will be introduced nationwide later this year.

“It will never not be heartbreaking to hear that your child has SMA,” Jesy said. “But to know that their life will not have to look like this is just amazing.”

A Mother’s Promise

Despite the ongoing surgeries, hospital visits and uncertainty, Jesy’s biggest wish is that her daughters never see themselves as defined by their condition.

Instead, she hopes Ocean and Story will grow up recognising their own strength.

“I want my girls to know that this is their little superpower,” she said. “I want them to know how brave they are and how resilient they are.”

Jesy also admitted she has only managed to watch her documentary once because reliving months of hospital stays and emotional battles was simply too painful.

For the singer, the film isn’t just about sharing her family’s story—it’s about ensuring that future families facing SMA have greater hope, earlier support and a brighter future.